Mother’s moving tale of parenting Treacher Collins Syndrome daughter

Date:

Eliza Bahneman and her husband’s lives were irrevocably altered on October 25, 2018, when their daughter Bella was born.

Bella astonished her parents by arriving a few weeks early, but she also surprised them by arriving as one of the most uncommon diamonds that can be found.

“We are expecting a child!” These are the sentiments that everyone enjoys hearing when they are preparing for a family. It took approximately nine months for my spouse and me to become expectant. I was beginning to experience feelings of anxiety and nervousness. It is astonishing how numerous emotions one can experience when contemplating the possibility of having children.

I was fortunate to have confided in my sister, sister-in-law, and a few companions about my pregnancy. We were all within a few weeks or months of one another. It was truly remarkable to have a companion with whom to discuss the advantages and disadvantages of pregnancy.

Aside from the fact that a significant curveball can be hurled at any given day, I have acquired a wealth of knowledge about life during our voyage. At times, we are fully prepared for change, while at other times, we are not.

As we approached our due date, the anticipation of welcoming our child began to build, as it does for the majority of couples. The room was impeccable and prepared to receive our infant. Our families were enthusiastic, and we were eager to observe the results of our labor. It was a delightful experience to observe the characteristics that the infants inherited from each parent. Additionally, I had heard numerous anecdotes regarding the challenges associated with lactation. I was eager to establish a connection with my infant, but I was also apprehensive about the forthcoming changes.

I experienced a pregnancy that was both effortless and remarkable. I was initially classified as high-risk due to a heart-shaped uterus, but we subsequently discovered that this was not the case. I underwent all of the other prenatal testings, as I delivered Bella at the age of 35 and had an ultrasound on a monthly basis.

Everything returned to its original state.

My husband was working late on the evening of October 24th, while I was in the process of finalizing Bella’s room and maternity bag. Prior to retiring for the evening at 11:30 p.m., I transmitted a photograph of my abdomen and a message from Bella to her father via text. “Hello, Daddy. Mommy believes that I will arrive early.” She is under the impression that she will not be expectant for an extended period of time. I am eagerly anticipating our encounter. ‘I love you, Daddy.’

My water ruptured at 1:15 a.m. on October 25, 2018. Bella was scheduled to arrive one month ahead of schedule. I was in a state of agitation, as we had not yet attended any classes (which, as I would later discover, are unnecessary). My nails and hair were a disaster, our car seat had not yet been installed, and my bag was only half-packed. It was not the manner in which I had anticipated giving birth. Ultimately, we contacted my parents and proceeded to the hospital in unison. The enjoyment of labor commenced!

Bella’s pulse rate would dramatically decrease during my labor, necessitating that I remain side-prone on my right side. (This was later clarified as a result of her diminutive airway.) I experienced nausea and somnolence as a result of the epidural and Pitocin. I would push and then be required to return to my right side when it was time to push. I experienced a sense of unease, bewilderment, and lack of enthusiasm. It appeared that there was a plethora of activity. My mother, spouse, midwife, and delivery nurse were already present in my room, in addition to the NICU. We were informed that the infant was having difficulty emerging after straining for approximately 30 minutes. In addition to the other individuals, my obstetrician was summoned to the room. The configuration of my pelvic necessitated the assistance of two individuals in the delivery of Bella.That’s great.Everything returned to its original state.

My husband was working late on the evening of October 24th, while I was in the process of finalizing Bella’s room and maternity bag. Prior to retiring for the evening at 11:30 p.m., I transmitted a photograph of my abdomen and a message from Bella to her father via text. “Hello, Daddy. Mommy believes that I will arrive early.” She is under the impression that she will not be expectant for an extended period of time. I am eagerly anticipating our encounter. ‘I love you, Daddy.’

My water ruptured at 1:15 a.m. on October 25, 2018. Bella was scheduled to arrive one month ahead of schedule. I was in a state of agitation, as we had not yet attended any classes (which, as I would later discover, are unnecessary). My nails and hair were a disaster, our car seat had not yet been installed, and my bag was only half-packed. It was not the manner in which I had anticipated giving birth. Ultimately, we contacted my parents and proceeded to the hospital in unison. The enjoyment of labor commenced!

Bella’s pulse rate would dramatically decrease during my labor, necessitating that I remain side-prone on my right side. (This was later clarified as a result of her diminutive airway.) I experienced nausea and somnolence as a result of the epidural and Pitocin. I would push and then be required to return to my right side when it was time to push. I experienced a sense of unease, bewilderment, and lack of enthusiasm. It appeared that there was a plethora of activity. My mother, spouse, midwife, and delivery nurse were already present in my room, in addition to the NICU. We were informed that the infant was having difficulty emerging after straining for approximately 30 minutes. In addition to the other individuals, my obstetrician was summoned to the room. The configuration of my pelvic necessitated the assistance of two individuals in the delivery of Bella. That’s great.

Bella entered our world after 12 hours of labor. She arrived with her head held high, weighing five and a half pounds. I observed a folded ear that was exceedingly diminutive upon her arrival. I was informed that infants appear peculiar upon their birth, so I did not consider it to be a significant issue. She was diminutive, sallow, and susceptible. I was eager and prepared to meet our newborn daughter! When I realized that something was amiss, I was beaming and eagerly anticipating the opportunity to hold my infant. “Why is no one congratulating me?” What is the reason for my husband’s anxiety and confusion? What is the reason for my mother’s inability to gaze upon me? What was the reason for my physician’s absence? Why are all of these individuals entering my room? My chamber was devoid of sound. No one spoke. The silence tore me apart, it broke me, and it devastated my heart. I collapsed, feeling frightened, bewildered, and disoriented. I am overcome with emotion as I compose this. These memories are revisited with a melancholy heart, and I am reminded that my daughter’s arrival was not celebrated.

Other specialists entered and exited the premises, taking notes. “What is transpiring?” What was my error? Why are so many individuals impinging on our special occasion?

I finally caught a glimpse of Bella, and she appeared to be “different.”

An experience that is intended to be unique was frightening. The room was eerily disorganized. My father, who was still concealed behind the curtain, entered the room and shouted, “What is transpiring?” My mother had collected as much information as she could and informed my father, “Things will be alright, but we don’t know much.”Other specialists entered and exited the premises, taking notes. “What is transpiring?” What was my error? Why are so many individuals impinging on our special occasion?

I finally caught a glimpse of Bella, and she appeared to be “different.”

An experience that is intended to be unique was frightening. The room was eerily disorganized. My father, who was still concealed behind the curtain, entered the room and shouted, “What is transpiring?” My mother had collected as much information as she could and informed my father, “Things will be alright, but we don’t know much.”

Thank you for sharing your story! Bella is beautiful and special and so are you and your husband. Stay strong for your girl. 💕

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